Living and Dying with Dementia in England: Barriers to care

Marie Curie Cancer Care & Alzheimer’s Society, December 2014.

living & dying with dementia report

Dementia sufferers lack proper care because the illness is not recognised as a terminal diagnosis, according to a report from two leading charities. The report highlights the issues faced by dementia sufferers in the late stages of their lives and the barriers to the high-quality care they require. The report addressed the terminal nature of the illness, calling it ”the forgotten aspect of what has been referred to as a silent epidemic.” The report adds: ”To date much of the focus has been on living well with dementia, with little focus on the experiences of people with dementia nearing the end of their lives”


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